Monday 20 May 2013

i ♡ NYC

I've been struggling a bit recently with aches and pains. I feel like an old woman most of the time, in pain getting out of bed or getting up from a chair. I'm trying to save all my energy for my trip to NYC on Friday. Learning to prioritise my day is essential to keeping myself upright!

Words can't describe how excited I am for NYC...only 4 sleeps to go!


I've been taking my injectable medication (Rebif) on time, three days a week, and have prepared everything to take it with me to New York. I've only been taking it for a couple of months but I really hope it will help me from suffering any form of relapse while i'm away. Despite the fluey symptoms which I get most days, It's worth it all in the long run.

The temperature is set to be pretty high so i'll need to find some cooling methods to take with me...

STAYING COOL

1. Replace usual moisturiser for Aloe Vera moisturiser - helps lower the skins temperature.  
2. Run wrists under cold water tap every couple of hours
3. Take tepid showers, not cold showers, as the body makes up for loss of heat after a cold shower.
4. Eat little and often and avoid high protein foods as they increase metabolic heat (paleo diet goes out the window)

My list of things to do before I go is finally starting to go down!

1. Playlist for ipod & ipad - plane (it's a girlie trip with my Rhi Rhi so N'sync, Backstreet Boys, Spice Girls, Michael Jackson etc... is essential!)
2. Confirm Travel Insurance
3. Pack medication in to really tragic school trip looking medical cool bag
4. Collect over priced dry cleaning and pack
5. Squeeze in one last gym session
6. Change up more dollars
7. Mani Pedi

I'm off to get a long nights sleep now before my pre holiday dental check up early tomorrow morning!

P x

Thursday 16 May 2013

PRESS COVERAGE

Check out some amazing press coverage of the Cake Break ... HERE

Tuesday 14 May 2013

A trip to Capital Radio

First of all I want to apologise for the insane delay on this post...I came down with the Flu last week and MS + Virus = WIPEOUT.

I feel awful because I wanted to post about this straight away...It was the most incredible evening with some of the most incredible people. 

So the school I work for was invited to Capital Radio by Help a Capital Child in order to see where we could join forces in raising funds for the charity. As part of the 'events team' and considering mummy runs the Charity Committee, I went along to see how I could help and perhaps get some information on HACC. I left with so much more.

I had a brilliant tour of the studio's and the Capital Radio building ..


Then we had a little champagne and snacks reception on the balcony walkway which, although a little windy, had a spectacular view...



But this was the best bit....

Here you can see;   Emily, Kay, Monica, Myself, Kyle, Ian, Viv and Shea. Meeting them was the highlight of my night. Read on to see why...


Now then, Emily, Kyle and Shea are incredible Powerchair Footballers who play down at the Greenwich Powerchair Football Club. The club has received great support from HACC so it made perfect sense that they were to explain why it is vital that there are people out there raising those all important funds. 

We had a question and answer session which was great for finding out more information about how the club works and whats its goals are for the future. It was amazing listening to the aspirations they have for future Paralympics, Competitive Leagues and over all raising the profile of Powerchair Football. This wouldn't be possible without the support and funding from places such as HACC and Lottery Funding and I want to help support them too. I was so inspired and left feeling so empowered after listening so carefully to what was being said...

"It's about INSPIRING THE COMMUNITY"
"Changing peoples attitudes"
"We are all the same"
"We NEED to raise AWARENESS"
"EQUALITY"
"The MONEY is vital"

But I wanted to hear from Emily, Kyle and Shea themselves, a little bit more about what it meant to them. 

So I asked them: "It's clear that you are an inspiration to others as we've seen this evening, but I want to know...What inspires you?"

Kyle: "My brother is my role model, my inspiration. Knowing I can do what he can do, but in a wheelchair make me feel good."  "at the end of the day, It's about how much you put in to the sport"

Shea: "Everyone keeps us going because we have to persuade everyone else out there it's worth while." "and you know if there are girls watching us play we have to impress them!"

Emily - Having spoken to Emily it's clear that she a feisty young girl who clearly takes great enjoyment from playing football and proving people wrong. She won't let herself be judged which I found so comforting at such a young age, especially for me as i've just about built up that defence since my diagnosis and it's not been easy. I use the word inspire a lot but she really did inspire me to keep a strong mentality and if you want to do it then DO IT!

I had a lovely chat with Kay and Monica as well as I wanted to know what it's like from a mothers point of view. I know from my own experience that mum's just pick up and carry on and they are there no matter what and tend to do it all with little look on their face they they might be struggling. 

Both Kay and Monica were just so strong. They want to break down the barriers, change perceptions and expand all inclusiveness. "There is something just so special. They make us proud as parents and they give us the drive to keep going" 

"Their outlook may be down to being young and perhaps a little naive but thats whats so beautiful about it, it's innocent."

I hope this has been a great insight into my evening with at Capital Radio supporting HACC, but also an insight into something you perhaps knew little about before. I certainly learned a lot about Powerchair Football and I would LOVE to head down to one of their games and see them play... 

(Kay/Monica...Do contact me and let me know when the next game is...I know my personal trainer is keen to come also) 

This isn't meant to be a sob story or one of 'rising from the ashes' ...it's about reality...it's about learning to face situations head on and having that positive outlook on life where nothing can stop you. And this is just a perfect example of that in action. This post is also to highlight the importance of Fundraising and supporting teams/ clubs/ causes like The Greenwich Powerchair Football Club which offers support for many children out there in more ways than one. 

"IT'S ABOUT WHAT YOU CAN DO, NOT WHAT YOU CAN'T OR CAN NO LONGER DO"


P x

Monday 6 May 2013

Saturday 4 May 2013

Be Inspired by JACK CARROLL

Right...for those of you who want to see someone who's been dealt a debilitating situation yet used it to their advantage and turned it into something positive... JACK CARROLL EVERYONE! 

Not to mention he has my favourite accent ever.

This is the attitude I am trying to promote. You live once, this is what we're faced with, so embrace it..and be funny..if you can..if you can't..well, Jack'll do that for you!

"If people do find some comfort or inspiration from what I do then brilliant, bonus! I'm never going to be Usain Bolt, right, that's sorted. But maybe I can focus on my strengths which is to bring joy to the world"




P xx

Friday 3 May 2013

MS HQ Cake Break with Oritse Williams

Today my best friend Rhiannon and I were fortunate enough to be invited to the MS HQ Cake Break in Cricklewood following out great success in raising £4,700 for the MS Society. 

We were buzzing with excitement to head over there and meet everyone in HQ so being our usual over the top hyper selves, we got dressed up, baked a cake a took a million photos! 






We were incredibly surprised to be told that Oritse Williams would be there as a guest of honour along side us to sign the cheque!! He was at HQ filming with his team to raise awareness for MS, a condition close to his heart considering his mother is a fellow MS-er. 

He had some incredible things to say and it was so humbling to see someone with such a high profile, use it in such an inspiring and positive way. We had a great chat and I was so encouraged to keep doing what i'm doing. I would love to collaborate with him one day and create a HUGE event for the MS Society in London which can be on the same scale as many other charity balls such as the BHF Tunnel of Love. 

Oritse , we spent a fabulous afternoon together, you make me, other MSer's and I'm sure most of all, your mother, SO proud by the support you give to finding a cure for MS. Never give up. 
#Faith. #Healtheworld



Rhi Rhi and I signing the cheque over for the money we raised last Sunday


Doughnut (no licking lips) competition


Rhi Rhi, Oritse and Me saying cheese for the camera after a really nice chat and we finished filming

Myself, Rhiannon and Oritse signing the Cheque for over £4000 raised at our Cake Break last Sunday

Lots of love... Rhi Rhi & Pow Pow

Grazia Photoshoot #MSSwag

Yes, you read that correctly.... GRAZIA!

I don't really know where to start really...

So I have this friend called Rebecca (@EmbraceBex) who I met through a mutual friend from school. Rebecca has MS and come this Monday it will be the 1 year anniversary of her diagnosis. Bex has been an incredible support line for me and although we've only met face to face a few times, I feel like i've known her since forever. 

We get on so well and she is always there everyday, every step of the way only a phone call away.
(I should be a poet) 

Unfortunately MS has such a wide spectrum of symptoms which vary from person to person, and Bex suffers from fatigue and dizziness really badly. This brings her morale and positivity levels down some days as I can only imagine how hard it must be living with it day in day out. So that's where I come in and try my very best to inspire her and many other people to maintain a positive and fresh outlook on life with MS.

Together we really want to raise awareness of MS amongst young people and show that we can be young, beautiful yet still have a condition such as this. So we approached several magazines and newspapers and we are SO pleased to say that GRAZIA is where we will be featuring in just 2 weeks time. 
Tuesday 14th May...Remember that!! 

The article is based on friends who have been faced with a difficult and/ or life changing experience, and how they have helped support each other in overcoming it. I won't give too much away but below are some pictures from the amazing day we spent with the photographers and make up artist in an outdoor park location in North London. 












I had such a wonderful day and although I was wiped out after for a good 24 hours, it was completely worth it. 

Watch this space for the ACTUAL Grazia spread released in just 11 days... #excitedmuch #MSswag

P xx